Hi Tammy, I am interested in hearing more about how your doctor is treating your son's bilateral OCD. How do crutches and braces keep the weight off of both knees at the same time? How long did the doctor feel he would have to wear these braces for? How long is he supposed to be out of sports for? I have 2 sons, 13 & 16, with bilateral OCD. Any info would be appreciated! Thanks! Kathie
Hi Drew's dad, I am Ryan's mom! Ryan was dx. two months with advanced bilateral OCD of his knees-it has been a very difficult two months but we are working through it and plan to come out of this stronger. My son was a very active and sucessful athlete-competing in every sport-his life took a devastating turn when he was diagnosed-no, this disease is not lifethreatening but definately life-altering-he is on crutches and is having leg braces so he can walk without crutches and still have the wt. off of his knees-we went through the Shriners organization and these $6,000.00 braces will be paid for-thank heavens. I have found through much reading and trips to specialists that there isn't a whole lot of info. on this disease or I should much treatment-it is a wait and see-I would strongly encourage your son to not run,jump or participate in sports as difficult as that is-stay strong-this will be his "hardest game yet"my prayers are with him-he is lucky to have you Tammy
I am 28 and was diagnosed with OCD at the age of 18. I am very active, but due to the detoriation of the cartilage in my knee I am unable to run. After 3 surgeries and tons of hard work on my part my knee is doing great. I am not a Dr and I do not know your son's diagnosis, but it is not the end of the world. It is important that your son be treated by a Dr and not overuse the knee if that is the recommendation. If you have specific questions about my treatment feel free to post back.
Hi. My 8-year-old son was diagnosed with osteochondritis dessicans about 3 weeks ago. He too was heartbroken about missing soccer and letting his team down. We have been going to all the games on the sideline. My son has been on crutches for 3 weeks. One more week and then we will go in for another x-ray to check progress. If it shows some healing, then he will be off the crutches, but with no running or jumping for 1-2 months. I have a great orthopedic doctor (sports medicine specialist) and I totally trust him on this. I have also spoken with a physical therapist who is familiar with this diagnosis and I have read quite a bit online. It seems that at this young age (and 11 is still young) the prognosis is generally excellent and your son (and mind too) is likely to have a full recovery and get back into sports. Good luck, get a doctor you like and trust, and don't worry! -- Laurie
My 11 year old has been complaining of chronic knee pain in his left and right... Last night the doctor ordered an MRI and diagnoised this as OCD...I read a few emails on this forum and my concern over the future of my sons health has grown and my concern for the nature of this condition has immensely heightened.....We are at the beginning and I truely need to know from others what to ask, what to do and what not to do...Drew is going to his football game today for the 1st time not in pads...He cried much last night not for his condition but feeling he let his team down....I'm sad for him but determined to support him and help with whats before him ...I appreciate your advise, experiences and if moved so, your prayers....Thanks,Drews Dad