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Tibial Tubercle Transfer

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Topic Title: Tibial Tubercle Transfer
Created On: 06/27/2000 10:41 PM

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 02/04/2002 04:16 PM
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PamD-Suser16114

Posts: 2

Kelli,your story sounds very familiar. I had my first lateral release when I was 13 yrs old, knee problems ever since. I am now 35 and had a TTT last April. I was extremely motivated to return to work (Manufacturing Engineer responsible for a production line) but one week off work is highly optimistic. I returned to work 2 hrs / day after two weeks, but it was at least 6 weeks before I returned to work 40 hrs per week and more like 10 weeks before I was back to normal (more like 60hrs/week and lots of movement between lines and buildings). PT: I started working on range of movement 1 week after surgergy, and strength building PT about 3 weeks after surgery, and my doctor thought I was pushing myself too much. I was walking on my own at 6 weeks with considerable (but very careful) effort at the PT office and at home. This is not a minor surgery, and there is risk of a non-union with the bone graft on the shin if you over-do. However, I will also say that I wish I had this procedure done when I was 26. I'd been living in pain with frequent dislocations and a seriously atrophied VMO for 15 years, and finally got to a point where I couldn't walk anymore. I am still gaining strength, but my knee no longer is the limiting factor in my life. I even went snowshoeing yesterday! I cannot kneel on the knee that had this surgery, but to live without pain and be able to walk, I'm happy to make that trade.
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 02/04/2002 04:35 PM
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Tracy5203

Posts: 14

HI all. I am new to any type of posting but think that this will be the best way to get information. Its better to talk to those who have had this type of surgery. I am a 26 year old female who injured my right knee in a work related injury on May 6th 2000. Slipped and dislocated it twice before I fell down. Once to the right side then to the left side. I have been through 3 cortisone shots, 5 trys at Physical therapy (including heat therapy, ultrasound therapy, cold therapy and pool therapy). I have had 2 arthroscoptic surgeries and a lateral release. I have been to 3 pain management specialists (one who did a nerve block thinking that this may be RSD). I have been to a neuropsychologist (making sure that my mind was not making the pain worse then it was. It was not but I could have told them that). I am using the Tens Unit and have been on just about all anti-inflamitory and pain meds that there are out there. I am on my 3rd OS with another one doing this surgery. I have been told that I am to have a Fulkerson Osteotomy on March 8th at 7:45 a.m. and will have to stay in the hospital for atleast 1 night if not 2. Depending on my pain level. I am soooooooooo scared about this surgery coming up. I mean the other ones were a breeze but he has told me that this a MAJOR surgery and that scares me. I dont know exactly what they do and would like to know what the rehabilitation is like and how long. I have 2 more appts. before they do it and I am sure that they will tell me what happens but I would like it in laymans terms. Is there anyone out there that has had this and will write to me and talk to me about this. Maybe just having someone to talk to will help me allay some of these horrible fears that I have. Thank you in advance to anyone who would take the time to help me out. Hope to hear a response soon since the surgery is in only 4+ weeks.
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 02/05/2002 02:31 PM
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Amy16130

Posts: 2

I am a 23 year old who has had three knee surgeries on her left knee and going in for knee surgery on my right one soon. I also have had two scopes along with a lateral release (this was later reversed). The final third surgery on my left knee was a fulkerson and I have not had problems with it since. The rehab is hard and long but the outcome is well worth it. I was on crutches for nearly six weeks and had my brace on for about seven with the fulkerson. The physical therapy related to the fulkerson was not the easiest thing I have ever done but with a little hard work and willpower, within 3 1/2 months I was just about completly back up to speed on my regular activities.
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 02/07/2002 10:19 PM
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diane13254

Posts: 30

i had the ttt on 1/24 on the left knee. i was in the hospital for four days after the surgery because the turney was on too tight during surgery and i lost the feeling superficially for about 24 hrs. I've been using a polar care cuff to keep the swelling down and have begun to put wt on the leg. it is shaky and it does hurt like hell. i've stopped taking the drugs except at night to help me sleep through the throbbing. I feel stroner each day but I'm taking a third week off from work so I can build up my stamina (which is shot to hell) and to strengthen my leg.thanks to anonomous for the helpful hints especially the baby wipes.
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 02/08/2002 04:37 PM
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jj

Posts: 104

moriartymoe, GOOD TO HEAR FROM YOU, you sound like you are doing greaT! Yeah, those baby wipes come in handy when you are too sore or dizzy post-op to "shower". Keep up those spirits----jj
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 02/08/2002 10:15 PM
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diane13254

Posts: 30

looking forward, does anyone know a good salve or lotion to help with diminishing the scar? also, I had the ttt on the left knee, how do you get the straight braced leg in the car? Do you sit on a pillow to reach the pedal with the driving foot? How do you get that darn shoe and sock on the braced leg? any hints?
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 02/10/2002 01:25 AM
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KelliLehmannuser16090

Posts: 8

The shoe and sock question is right up my alley as an OT student. You can go to any durable medical place and get a sock aide. You slide the sock over it and slide you foot right into it. A reacher and bath bench are also good ideas. Check with your insurance and if you need a Dr. script to cover the cost! I plan on getting them for my surgery next month. I just didn't expect to be using all this knowledge on myself as well! Let me know how it works for you! I am the adaptive equiptment queen!
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 02/10/2002 01:36 PM
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jj

Posts: 104

One more shoe/sock tip for women. If you need to wear dresses with nylons, wear thigh high or garter stockings on your one non-braced leg. Ooo la la and saves money by not having to cut leg off pantyhose.
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 02/10/2002 02:08 PM
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Lisa16193

Posts: 6

I'm having a TTT on Wednesday. This will make 4 surgeries in 14 months. This should be the last. I had a open end femoral osteodomy in Nov. 2000, that was the hardest and most painful anything I've ever been through. I had a medial reefing in Nov. 2001 and was back to work in 2 weeks, and in PT within days, back with my personal trainer in 2 1/2 weeks. That was an easy recover. I have 2 OS working with me because I've turned into such a wierd case. Both say the recovery from this surgery should be very easy about the same as the last surgery. I do think they have very high expectations of me, and I have a very high tolerance for pain. But I'm an out patient and I go home w/ the CPM (continued passive motion machine) and I'm weight bearing that day. I'm hoping this is it. Let me know more about how yours is doing now, thanks Lisa
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 02/11/2002 12:23 PM
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diane13254

Posts: 30

to Kelli and Anonymous any suggestions for adapting the car? i need to create something to rest my braced left leg on while driving. also, does sitting on a pillow help you reach the pedals with the right leg? any salve or lotion for the scar?
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 02/11/2002 02:58 PM
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jj

Posts: 104

hi moriartymoe, for scars i used aloe vera lotion and sunblock when outside in sun. There is new product I tried on elbow scar. Forgot the name, its a gel-like patch to wear on scar. as far a car seat, I just moved seat back and stretched right foot to reach. When right leg was in brace, moved leg to passenger seat and drove with left foot. Some doctors won't allow driving at all, so I kept it to a minimum. good luck!!! sounds like you are doing well.--jj
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 02/11/2002 04:30 PM
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KelliLehmannuser16090

Posts: 8

For driving you have to be careful. You could use a pillow to raise up and duck tape a block on the brake in order to move the seat back and reach it. Make sure that it is secure and you are comfortable with it. If you miss it you could be in trouble. I don't know about scars. Ultrasound has been used to break up scar tissue in the knee but don't know anything for external except antibiotic ointment and a good surgical closure.
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 02/15/2002 07:10 AM
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Craig16260

Posts: 2

Like many others, I have recently discovered this discussion group out of necessity. I am 41 and very active, running, biking, skiing, basketball ... I too have been told that TTT is in my near future, that or give up my activities. I have had no previous knee surgery, but reconstructive sugery on both ankles. Has anyone out there been able to return to a very active life style successfully? not successfully? I deal with the pain and am highly motivated, but if a year from now I cannot play basketball or bike I'll be very disappointed. Thanks
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 02/15/2002 01:17 PM
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judy16265

Posts: 2

craig, good luck and try to keep going as long as possible. I found post-ttt I was able to do many sports...but not all. No more running or soccer. I tried to downhill ski and play racketball, but just cound not do it. I could bike, walk, golf, cross-county ski, and do LIGHT hiking. Its better to focus on what you can do instead of what you can't. ---jj
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 02/16/2002 12:03 PM
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KelliLehmannuser16090

Posts: 8

Hi all! I have hit maximum frustration. I went for a second opinion at the request of my mother. don't ask. This os told me in 5 minuets that they don't operate for pain. I just need to stregthen my quads. This won't cause any degenerative problems. He says to just live with the pain. He said because I haven't dislocated my knee that I don't need the surgery. I don't know what to think now. I have spent 10 years strengthening my my quads to just have them deteriorate as soon as I get cleared from PT. I constantly feel my knee catching and popping. It locks and hurts with any activity. Mechanically it makes sense to have the TTT done. The os's have said it won't hurt my knee anymore, it will help at least some. Any suggestions?????
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 02/16/2002 01:48 PM
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jj

Posts: 104

kelli, did you already have lateral releases? If so maybe third time is a charm with getting os opinions. Having a ttt is not really something anyone WANTS to have...only if no other choice will help. good luck
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 02/16/2002 01:51 PM
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Crazygirl14594

Posts: 135

I am having the Fulkerson procedure to reduce pain and correct my knee alignment in august. Have read some positive stories, but I'd like to know more people who've had this surgery at young age (I'm 25). I have pain and an unstable knee/patella. My patella rides laterally and is deformed of the constant subluxing. Is it wise for me to have the surgery? Conservative treatment doesn't help and I had a failed LR. Any input? I want to put the surgery off but am not sure this is wise. PLease help
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 02/16/2002 05:29 PM
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diane13254

Posts: 30

drove the car for the last 2 days with the seat all the way back, sitting on a pillow. thanks for the tips. having a problem with the sidelying exercise, where you move your surgical leg with your other foot and bend the knee towards your butt. Seems that everyday it starts out frozen and then with a loy of pain, it loosens up. I can't seem to get it to bend 90 degrees like the os did in the office. Any suggestions? Has anyone rode the bike with the good leg while resting the bad leg?
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 02/20/2002 07:34 PM
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Sharon16341

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I've had 2 lateral releases, the most recent was september of last year. Ever since that surgery my pain has been getting worse and worse. I've been in PT pretty much nonstop for the last 6 months and it's done nothing for the pain. I know that my next step is a TTT but my current doctor doesn't want to do surgery on me. He seems to think that the pain will go away on it's own. How effective is the TTT? I know it's a hard surgery to come back from but if it works I want it done because I'm really sick of living with this pain!
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 02/20/2002 08:51 PM
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Tracy5203

Posts: 14

To SBL 17@aol.com. I am a 27 year old female who has injured my right knee. My posting is in here somewhere. I have not had my TTT yet but will be in 2 weeks so I cannot tell you how that may be from my perspective but from my point of veiw I would suggest to you that you go to get a second or third opinion. I also was told that the pain would go away. I have now been through 2 arthroscopies and a lateral release. I have been sent to a Neuropsychologist twice to find out if it was just my mind making up the pain and making it worse then it is. Well the 2 os's that I went to were wrong and I am now with someone else who told me that because they kept insisting that it would go away there has been more damage done. Now I am having this major surgery in two weeks and I feel its the other doctors fault. If there is no cartelige in your knee or little of it then you are wearing it down more and more and creating more damage that will catch up with you later. I am also looking at a Knee Replacement in 15 years. I feel I am to young for this. So please get this fixed before it becomes to late. If you would like to e-mail me you may and maybe we can compare stories.
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 02/20/2002 10:56 PM
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Michele16347

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Hi. I am planning to have the fulkerson procedure done on my right knee. My left is bad too, but I don't think that I could handle doing them together. I was planning on using a surgeon at the Hospital for Special Surgery in NYC. He told me that there really aren't any surgeons with a tremendous amount of experience doing these procedures because they aren't common. Was this your experience or did you find someone who has done more than two dozen of these surgeries? I am very nervous about this. From what my surgeon told me it is not unusual for you to still be getting PT. I was told 6wks no driving, with crutches. Then 3months with a cane, and a year until full activitites are resumed. Any advice would be appreciated. Thanks and good luck in your recovery.
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 02/25/2002 09:32 PM
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diane13254

Posts: 30

to Nash: if you read most of the postings in this forum you will get a lot of different opinions and some very helpful advice. I had the TTT on my left knee on Jan.24th. I'm still in the hip to ankle brace (8wks) but am off crutches, driving the car, back to work fulltime after 3 wks and of all the meds. Use the polar cuff (circulating ice water with compression) after the surgery. It keeps the swelling and the pain down. My hospital stay was for four days because the tourney was left on too long in surgery and deadened my nerves for 2 days. No shower for a while so anonymous told me to use babywipes-a life saver. good luck and let us all know how you make out.
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 03/01/2002 11:24 AM
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Lynn16442

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I had fulkersons procedure in 28 Sept, hospital stay was overnight but was in brace and crutches for 12 weeks (no weight bearing), went down to one crutch for 3 weeks and cane for 3 weeks. I have been in PT since 1 Oct, (days after surgery) because I was in the brace so long I lost all my muscle functions and had to gain them back which takes forever. Before the surgery I was running 3 miles a day. I have arthritis in my joint and under the knee cap, Osgood schlatters disease, chondromalacia and now tendinitis all caused by malalignment of my knees. The OS trained along side Dr Fulkerson so he knows what he was doing but he was just not forthcoming with how long the recovery would be, he has no bed side manner. I am in the military so my number one priority is to get better. I am still in PT three times a week and recently had to ease off exercising until the arthritis and tendinitis stop flarring up. It is a rough surgery but I can feel a significant difference in my right than my left, but have been told that I will never run, squat, or do any repetative knee bending things ever again.
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 03/04/2002 04:47 PM
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Cathy12575

Posts: 12

I have not posted on this board since august of 2001. My bad. Anyway, I came to this area after a knee injury, subsequent dislocations and a lateral release. I have the TTT done on July 06, 2001. I had a cast on for 4 days. Then a full leg brace for 6 weeks. When I came out of surgery I had a portable cooler filled with ice water and a tube that was circulating the water over the sugerical area, the device is called polor ice. I highly recommend it. My swelling was minimal at best. My doctor ordered the CPM machine. I used it faithfully 3 times a day for one hour. I began driving on week 2 and PT on Week 3. I did pool therapy which was awesome, and some other basic bike, stretches etc. I went to PT for 10 visits, followed up at the pool in my Health Club for a month. In september I began coaching AYSO Soccer I though my doctor was going to have a cow. I wore my brace for the first few weeks in Sept, but then I dropped it. I have full fuction with my knee now, I can bend, kneel, dance, run, bike ride, excerise.. my doctor is totally amazed. He never expected me to do 1/4 of the things I can do now, after the surgery. I recommend the surgery. There is one other little thing I did before, during, and after the surgery ladies, I took prenatal vitamins. Look at me now I am very glad I had the surgery and will have it done on the other knee mid 2003. Email me if anyone has a question etc. ~Cathy
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 03/16/2002 06:02 PM
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wicked_smart

Posts: 5

I am an active 26 year old male who injured my right knee falling through a ceiling while on the job. My os thought that I may have torn some ligements in my knee, although the MRI proved that this was not the case. I have been in PT for the past two months trying to rehab my knee to no avail. My patella cracks, pops, and sloshes around when ever I walk and I suffer from cronic pain as well. My os told me that if my knee did not improve than I would most likely have to have a Tibial Tubercle Transfer, since I had already had a lateral release 12 years earlier for a knee injury and this injury seemed to of caused this to fail. My questions are the following: I work in the construction industry and constantly have to life 50+ lbs while climbing up and down a ladder. I also spend a great deal of time crawling around on my hands and knees for a hour or more while working in tight spaces. How will this surgery affect my ability to do my job or will I have to find a new line of work. I also lead an active lifestyle outside of work. I enjoy playing hockey, running, sking, snowboarding, softball and such. How will this surgery affect my ability to continue to do these things. Finally how long can the rehab be, how much pain can i expect, and will I still be able to live my life as I always have. Most importantly will I be able to continue in the same line of work. Thank you very much for your time
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 03/17/2002 12:35 PM
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jj

Posts: 104

dear wicked, i was your age when had TTTs. sorry to say but, Be prepared to make lifestyle changes. Many sports will ok after ttts. however, many are too hard on knee, like running, snowboarding, etc. jobwise you might prepare for a career change. in construction a supervisor, estimator, inspector or bookkeeper might be considered. if work injury, your employer may retrain you. good luck.-jj
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 03/18/2002 09:48 AM
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SayNo2Me

Posts: 3

Looks like I am back for round TWO on the other knee folks. TTT done on left knee in 11/2000 and have been waiting to do the right knee with a TTT, lloks like it mat be nearer then I would like. I think I would prefer a tottal knee replacement than going through the TTT again.
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 03/18/2002 10:46 AM
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sadiego

Posts: 2

I am scheduled to have a TTT on April 16th. I've been told by my doctor that I can expect to be out of work for 2 weeks, on crutches for a month, and in a brace for 3 months. Does that sound reasonable/realistic to those of you who have had this procedure? Also, any tips/ideas on how to make life easier for the first few weeks would be very much appreciated. Thanks!
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 03/21/2002 08:13 PM
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Lili14733

Posts: 16

As an almost 8 month post TTT sufferer, I heartily recommend--no urge you to make sure you are lined up for PT the soonest possible. I was 6 weeks post surgery before referral, and the PTs were, frankly, incredulous my knee had been totally immobilized for 6 weeks and I had been given no instructions about what exercises to do in that time period. As a consequence, I still have no quad function and limp and am finding it an excruciatingly difficult rehab. Hope you get PT immediately and get ROM and strength back ASAP. Best wishes, Lili
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 05/29/2002 05:01 AM
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kstei2

Posts: 2

I am a 27 year old female who found out yesterday that I would need a TTT if my painful, clicking knee was to be sorted out. I've been having physio and have tried strapping and exercising but the symptoms have not eased at all. Can anyone give me any advice and information about the op because as yet I haven't been told very much and the thought of an operation scares me, but the thought of another 50 or whatever years of living with this problem scares me even more.
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 09/09/2002 07:17 PM
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18569

Posts: 2

I'm a 29 yr old female who had a lateral release done 2 yrs ago. I'm am also at a point where we are considering a TTT - but my Dr (at Univ of Tenn) is advising against the TTT and more towards a patellaectomy (removing the knee cap) for more pain relief. I know that it sound drastic, but I have been reading postings on this site and have received a couple of emails from patients with the TTT and some are wondering in the long run if the removal of the knee cap would not have been better. I would research this option with your doctor before deciding. My prayers are with you.
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 09/09/2002 07:53 PM
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matt15371

Posts: 4

I had the TTT done almost a year ago, I was scared at first but now I am very happy I had it done. I was in a great deal of pain for about 3 weeks and after during that 3 weeks I had a hemotomia over the knee area that had to be extracted other then that I am very happy I am back to walking without a limp and can do exercises without having pain, a little uncomfortable but nothing like it was.
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 09/11/2002 09:39 AM
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Kathy28

Posts: 15

It appears to me that most of you all think that the TTT is a good thing? Does it seem that it is much better than a lateral release? I went to an ortho for the first time in seven years about my dislocating kneecap. He was astounded at how loose it was and started me on physical therepy for three weeks, but told me that he would just skip the LR and go right into a TTT if i came back after the therepy not feeling any better. I'm scared to have this surgery since it seems so major, but if it would take care of the pain and the recurrent dislocations, i am all for it. Can anyone tell me about a success rate percentage for this procedure? Thanks so much! Kathy
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 09/11/2002 11:45 PM
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Patti15781

Posts: 6

I am 40 years old and have gone through a total of 12 surgeries on my knees. I had the TTT done on both knees without any relief. I had both knees replaced at the same time this past April. my pain inside the joint is no longer there. I still have some soft tissue pain and soreness, but my knees fell tremendously better. I would recommend that you discuss replacments with your doctor and seek oot a second or even a third opinion. Don't let the doctors tell you that age plays a factor because they will. I am glad that I had the replacments done on my knees. And I would recommend it to anyone who has had multiple surgeries with out success in relieving the pain.
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 09/11/2002 11:46 PM
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Patti15781

Posts: 6

I am 40 years old and have gone through a total of 12 surgeries on my knees. I had the TTT done on both knees without any relief. I had both knees replaced at the same time this past April. my pain inside the joint is no longer there. I still have some soft tissue pain and soreness, but my knees fell tremendously better. I would recommend that you discuss replacments with your doctor and seek oot a second or even a third opinion. Don't let the doctors tell you that age plays a factor because they will. I am glad that I had the replacments done on my knees. And I would recommend it to anyone who has had multiple surgeries with out success in relieving the pain.
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 09/12/2002 10:43 AM
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Courtney15736

Posts: 8

I had TTT with a lateral release almost 7 months ago and I'm very happy with the results. My left knee is actually the problem in my recovery because I need the surgery on that knee as well. It took me 12 weeks to get my bend back to 90 degrees and that was very frustrating. I had the surgery from having severe arthritis under my right kneecap after having surgery on it 23 years ago. So they sort of modified this surgery for me. But my sister had TTT on both knees 6 years ago (at the same time) and had great success with it too. I would recommend it, even if it is a long, slow recovery. I was out of work for 3 months but I also live in a walk up apartment in NYC so I had to move home to recover from this. Good luck.
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 09/17/2002 09:17 AM
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Kathy28

Posts: 15

Well, here I am in my second week of pre-op therepy. This was supposed to be in hopes that it would make the TTT unnecessary, but as it goes on and my knee is swelling and hurting worse that before the therepy, I am now definitely in pre-op strength therepy. So now I just wait until my next appointment on the 30th. I hope they can schedule me for the surgery very soon because I want this to be done!! Does anyone know if it means anything that the actual motions of therepy don't really hurt, but after I go home and well into the next days, my knee becomes very swollen and hurts like crazy? The therepist said that it's ok as long as I can still do the exercise... well, I hope I'm not boring anyone with my comments - it's sorta thereputic to feel like you are talking to people who understand! Kathy
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 09/17/2002 09:23 PM
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Chupak13095

Posts: 8

Kathy, well i had my surgery may 21,2001 and my knee feels great now. but while i was going to therapy before and even with some exercises after the surgery i would get pain and swelling like u talk about and my doctor and physical therapist both would tell me not to any exercises that cause pain or to do less repitions of them or not use as much weight. so just be careful if the exericses are giving u pain and maybe u should ask your doctor what he thinks.
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 09/18/2002 08:11 AM
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Kathy28

Posts: 15

Ok, just because I'm bored, I have another question! Have you ever had your knee taped? Like where they tape it to hold your kneecap over? This is something they have been doing to my knee since I started therepy and I hate it - it doesn't hurt, but it feels really weird. They say it's supposed to train my kneecap to track right. Just wondered if you had ever heard of it? Kathy
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 09/18/2002 03:49 PM
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Chupak13095

Posts: 8

i have had three knee surgeries and they did the taping at my first round of physical therapy before my first surgery. it didnt really give me any extra pain but the taping didnt help me kneecap at all. they thought it was going to and even taught me how to do it myself but it didnt work.
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