I'm new to this website and I'm not sure if this is where I should be posting this but I figured it would be worth a shot.
For the past 3 years I have suffered from Medial Subluxation, with on and off Bursitis/Saphenous Nerve inflammation. I am fully aware that this is a rare problem, which is perhaps why nobody has a solution for it.
I am deperate. I have all but given up my life for this stupid problem. I love to ski, but in the course of a year I went from skiing down double black diamons, going off og jumps and rails, to having extreme pain just from a leisurely turn or stop. I also enjoy playing tennis during the summer months, that too has been given up. I also spent some time dancing, nothing too serious, but I enjoyed it and once more had to give it up. I'm a Sophomore in college, so I'm not necessarily at a point in my life where I'm ready to give up things I enjoy doing. It's not just sporting activities either, simple tasks such as taking a walk, climing the stairs, or working (which, unfortauntley is not an option to give up) causes me a great deal of pain.
Now, for all of the treatments I have had done. Physical Therapy (continuously for 1 1/2 years, on and off for the rest of the time, and at home), Prolotherapy, Cortisone and Lidocaine injections (both mande the pain astronomically worse, as in not walking for days), Lidoderm patches, Volteran gel, Anti-inflammatories, Prescription painkillers, Prescription steroids to stop the inflammations, rest, heat, ice. You name it, I've probably done it/ I can assure anybody who suggests patellafemoral, that I do not have it. My legs are in great shap and muscle is evenly distributed. If anything, there is more on the inner quad than the outside.
As for surgery, there are quite a few options for people with lateral subluxation, but nothing has been offered to me to fix medial subluxation. Is there anything out there? Most surgerons I see refuse to acknowledge the problem and only offer to do what they know and are comfortable with. (lateral relsease, osteotomy, etc.) I have finally found a doctor who, if I may, "knows better" than the previous doctors. He shares my concern of doing these procedures because there is a higher risk of making things worse than they already are.
I know there are procedures to tighten and reconstruct the lateral ligaments, is this not possible for the medial ones as well? As for an Osteotomy, if it is possible to move a piece of the Tibia to realign the knee to stop lateral subluxation, why can the same not be done for the medial side? I know that these are questions I should be asking my doctor, but I'd like some ideas for the next time I have an appointment with him.
Thanks in advance for any help/advice!