Incurable IT Band Syndrome

I'm desperate for some help. I'm a long time triathlete. Came down with my most recent case of IT band syndrome in the middle of training for my first ironman. (March was the onset) I'd gotten over the other bouts of ITBS with stretching, ice and small reduction in activity. Anyway, trained through the pain with cortisone shots, and no running. I continued biking and swimming. Made it through the Ironman and have done virtually no exercise since then. (Since July...it's now November) Have gone to PT for 6 months, done accupuncture, massage, ice, extensive stretching and theres virtually no change. have had 2 MRIs, a bone scan and blood tests which are all normal. Got orthodics to correct biomechanical imbalances 3 weeks ago, but no change. I'm in pain to walk, and even to swim, along the outside of the knee (where standard ITB pain is) and below the kneecap. (typical with patella tendonitis, but dont have the other symptoms of that) Currently I'm trying A.R.T. therapy with my massage therapist. I fear I will never to be able to run, cycle or even walk comfortably again. I'd be eternally greatful if somone could shed some light on this problem. Thanks!