02/23/2006 07:56 PM
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linds132

Posts: 6
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Ruby- Well, I'm off of that pain patch now. It was so strong, it made my eyes swell up, so i guess I'm allergic to it. Yeah, my knee dislocates medially, which the opposite of how most peoples knees dislocate. It does it a lot... sometimes it hurt, and sometimes it doesn't. And it never did that until after the lateral release. But I always have pain. I also have shallow grooves and a bad Q angle... which i think has to do with the alignment of your hips and knees with you femur. Do you know what your Q angle is? I had a CT scan done a few days ago that the doctor in Detroit wanted, and mine is 34. The normal angle is 15... so mine is really severe. The guy in Detroit is going to review it and see if he can do a surgery called a femoral derotation osteotomy... They cut your femur in half, position it differently, and use plates and screws to put it back together. It's a really invasive surgery but it might be the only thing that will help me.
I'm sorry to hear about your pain memory. I know i would be scared if my knee disclocated like yours did too. I'm always really scared about my knee giving out on me. Sometimes it will just give out or collapse and i will fall to the floor and cry. I think I'm kind of scared all the time that that will happen, so I wear a brace with hinges. Maybe that could help you? I don't really know. Just try not to think about it... I know it's hard, but maybe if you can keep your mind off of it you could just enjoy yourself without being paranoid. I hope you get better soon! -Lindsay
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02/19/2006 10:00 PM
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sweethart4390

Posts: 4
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hey lindsay- wow that narcotic you are on sounds kinda hardcore. more addictive than morphine? ouch. thats gonna hurt when you have to stop. withdrawl is not fun at all...though it sounds like you will be on the narcotic for awhile. i dont think i'll qualify for such a strong drug...i only really get pain when i bend my knee, and thats only because of the crepitus. my pain isnt constant, and when i do get it, its not excruciating or anything...nothing that advil doesnt make tolerable! sounds like you are going through ALOT of pain though, if they have you on narcotics. my doctor said that i had more of a problem with pain managment, and i have a "pain memory," which i guess is that i cant let go of the knee dislocation experiences, and since i cant let go, im constantly paranoid that it'l happen again. have you dislocated your knee/s ever? what was it like, if so? some people say that it didnt hurt at all, but that definitly was not my experience. my doctor said that everyone's pain varies because of the location of their nerves, etc. I dont think that i have misalignment, or at least my doctor hasnt told me about it if i do...i just know that i have a bad q angle, the groove is shallow, and my kneecaps sit too high. that and im just naturally flexable. -ruby
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02/10/2006 02:41 PM
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sweethart4390

Posts: 4
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Hi, im 15 years old, and in the past 2 years, ive had 2 major dislocations and many subluxations. Last april, i had a lateral realease. the recovery wasnt very smooth though. First i reacted really badly to the anesthesa, and im not going to go into that, but lets just say that it wasnt pretty, and a emergency room trip ensued. After that, only two days since the sugery, i had another problem. The pain wasnt that bad, i wasnt even taking my vicoden, but then, when i stood up to get the phone, my whole knee started going veryyyyy painfully numb. It was excruciating, and even vicoden didnt even dull the pain. Another trip to the emergency room. Anyway, the doctors guessed that i had a hematoma, which is a buildup of blood (apparently one of my blood vessels wasnt caterized right), and that the blood had compressed some nerves. It was fun, let me tell you. After that the pain in my knee was alot worse. I need percosett, and even that didnt make it go away. I was supposed to go back to school in three days, and my knee was supposed to look normal in a month tops, but the end result was two weeks out of school, and 3 months for normalcy. Since the surgery, ive had other problems. My knee subluxes alot, and im pretty sure it would dislocate if i ever did anything more than walking. Also, i now have crepitus, which is irritation under the kneecap, and its painful and annoying, as well as getting worse. I was supposed to be absolutly better in 6 months tops, but its now been almost a year, and my recovery has plateaued. My doctor still thinks i have a good chance of getting better, but im beginning to doubt him, because my knee doesnt feel any better than it did before the lateral release. Recently, my doctor has talked about another operation to try, if i dont get any better. I dont remember how its spelled, but it sounds like triat, and its open surgery that involves moving the ligament to fix my q angle and putting screws in. Im really afraid to even try skiing or running or anything like that, becuase im very paranoid that my knee will dislocate and ill have to deal with the pain again. And like i said, my knee doesnt really feel any better. I just wanted to know if anyone has had anything like this happen, and if they know about the triat, and about failed lateral releases, or really anything that i ramble on about. I would really appreciate any advice anyone has to give.
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