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OCD surgery

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Topic Title: OCD surgery
Created On: 02/07/2004 09:10 AM

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 07/08/2008 04:15 PM
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JMReeves77

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Had my Allograft Procedure on 6/16/08. All is going well so far, pain is manageable at this point. Post-op the pain was unlike any other procedure i have had, but I attribute that to poor pain management on the hospitals part. I am 3 weeks into a 3 month 100% non-weightbearing stretch. I will keep you all posted of my progress...


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Stage IV OCD Right Knee Diagnosed 03/1995
Stage II OCD Left Knee Diagnosed 03/1995
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 05/14/2008 03:14 PM
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JMReeves77

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Ended up submitting my post twice due to it saying there was an error.

Mod: please delete.


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Stage IV OCD Right Knee Diagnosed 03/1995
Stage II OCD Left Knee Diagnosed 03/1995

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 05/14/2008 03:13 PM
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JMReeves77

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Hi all!

My name is Jared, I am a 30 year old Male with OCD of the Medial Femoral Condyle in both knees. I am very active with being an avid cyclist and Firefighter.

I started having issues with my knees at a very young age, probably around 9. I would have pain while running After repeated visits to a few different Orthopedic Surgeons I was finally diagnosed at the age 17 with OCD in both knees. The right much more symptomatic then the left. I was having severe pain, more so in the morning, major swelling as well as the tell tale symptom of Stage IV OCD the locking/catching sensations. After a diagnostic MRI was performed, which confirmed what my O.S. already knew, i was scheduled for my 1st Arthroscopy on my Rt knee. So on 4/16/1995 I went under General Anesthesia and awoke 4 hours later to uncontrollable shivering. They loaded me up with blankets and even got heat lamps to try and keep me warm. Anyway when i was later visited by my Doctor in the Recovery Area he explained that the lesion was larger than expected and 2 fragments where detached which he reattached with 2 Herbert Whipple Screws, he also vascularized the lesion bed to reestablish the blood supply to the area. The next part of this chapter was 10 times more unpleasant than any part of the surgical process. It was told to me (a 17 year old kid) that I was to not bear ANY weight on that leg whatsoever for 8 weeks, I also was not allowed to bend the knee for FOUR WEEKS, try sitting on a toilet with a Bledsoe brace locking it completely straight, very uncomfortable, to say the least. I actually was pretty good about the whole recover period, I only had one mishap where in the first couple of weeks i stumbled forward on the crutches and instinctively tried to catch myself by stepping forward with my right leg, i felt no pain but i was so scared that I damaged the repaired lesion that I freaked out. I called my OS who had me come in to do some XRays to make sure all was OK, which it was. At about the 6 to 7 week mark i started getting itchy to walk again, so i started to bear weight, which when i told my OS he was so pissed. But no harm no foul right? Well 13 years later I am finding out the hard way that just that is what could be causing my current disaster. Just as a quick aside in 2002 one of the screws backed out about an 1/8 inch on its own which I had removed surgically, not a very big deal according to the OS, he also noted that during the procedure he was able to determine that the repaired OCD lesion was still 80% intact. OK Hang on i need to crack my knuckles... OK... About a year ago i decide to deviate outside of my cycling routines and train to run in a local 5K race. Which I did, and had no pain while training and/or during the race. Then about 3 months ago i started getting these catching sensations again but along with it came these very sharp and severe pains. Then it progressed into pain that moved from place to place in my knee, but never in more than one spot at a time. So me being the utmost expert on my own knees (which most people with knee disorders are) I just knew that the repaired OCD had failed. I tried to make an appointment with my OS who was out of town for the entire week, I was like OMG i cant wait a week, but in the end i ended up having to wait FOUR! He confirmed my fears that i most likely have loose bodies floating in the knee, he then sent me for a special MRI at the Hospital for Special Surgery in Manhattan. Which confirmed that the OCD lesion was unstable and there was one large chunk floating in knee. The funny part of this is that during the time when the loose body was not interfering is really had minimal pain, and when it did catch i learned how to bend my knee a certain way that it would move it back to a "better" spot, so i was able to cope. Well after my doc got the MRI report he told me not only do I have an unstable OCD lesion again with the loose body, i also have full thickness cartilage defect in the trochlea, most likely due to arthritis. I was like" well doc you have any good news for me"?!?!? So he laughed and then gave me two options: 1) Scope it and clean out the loose bodies and debride the unstable fragments, 2) Osteochondral Allograft transplant. After discussing with my wife, we decided that I should do both. Get the immediate relief from the "clean out" procedure so I might then schedule the Allograft Transplant Procedure for sometime in the fall and not ruin my summer. Well it has been 2 weeks from my Scope now, and I can barely walk. The doctor said that my knee is a mess. He had to remove the remaining Herbert Screw by digging around it because the head had broken off, which supposedly is very common with those screws, He also had to completly remove all the Cartilage in the OCD lesion, and he Debrided and Microfractured the trochlea in an attempt to regenerate some fibrocartilage in that compartment. I now had my 2 week followup this morning with my OS. He basically said there will be no waiting for a more convientient time and I should (must) get on the donor list now for the Allograft. And also being that the swelling was so bad he had to drain my knee with a MONSTER needle. He said after the very unpleasent procedure was over that he got about 60 cc of blood and fluid out of my joint. But i still feels that it is so swollen.

So hopefully you made it through my story. I will keep you all posted as to when I am to undergo the Allograft procedure.

PS: I didn't even mention the OATS procedure I had done on my left knee in 03. That is a story for another day...

Sincerely,

Jared


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Stage IV OCD Right Knee Diagnosed 03/1995
Stage II OCD Left Knee Diagnosed 03/1995
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 04/01/2008 09:26 PM
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Jayneart

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I am a 31 year old female recently diagnosed and treated for OCD via arthroscopic surgery. I am in my first week of recovery after having four screws to stabilize the loose bone. I am curious to know how long you remained on crutches and how your recovery went/goes? Thank you for the update as I have 7 1/2 weeks remaining on crutches...


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 04/01/2008 09:23 PM
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Jayneart

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I am a 31 year old female recently diagnosed and treated for OCD via arthroscopic surgery. I am in my first week of recovery after having four screws to stabilize the loose bone. I am curious to know how long you remained on crutches and how your recovery went/goes? Thank you for the update as I have 7 1/2 weeks remaining on crutches...
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 04/01/2008 09:23 PM
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Jayneart

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I am a 31 year old female recently diagnosed and treated for OCD via arthroscopic surgery. I am in my first week of recovery after having four screws to stabilize the loose bone. I am curious to know how long you remained on crutches and how your recovery went/goes? Thank you for the update as I have 7 1/2 weeks remaining on crutches...
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 04/01/2008 09:22 PM
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Jayneart

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I am a 31 year old female recently diagnosed and treated for OCD via arthroscopic surgery. I am in my first week of recovery after having four screws to stabilize the loose bone. I am curious to know how long you remained on crutches and how your recovery went/goes? Thank you for the update as I have 7 1/2 weeks remaining on crutches...
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 10/31/2007 12:30 PM
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rjtholl

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I recently had knee surgery stemming from OCD lesions on my lateral femoral condyle. I am a 27 yr old male with a very active lifestyle. I had a feeling something was wrong with my knee when I was 17, it all started playing soccer and noticing that I needed to limp slightly while running. fully extending the knee was difficult. Keeping my knees bent was fine and I could sprint like that as long as i never had to fully extend the range of motion... It was not so much painful as seemingly broken in some way. I had xrays done back then with no result. As time wore on my knee would have tough mornings and sports especially sports with running became more diffulcult always weighing how much the knee would hurt tomorrow versus how much fun it would be today. I climbed about 6 mountains without too much pain in the years between... going up a mountain was never bad because your knees are bent so much going up and down.

Cut to age 25... finally I had full medical coverage through my job! I got the MRI I always wanted but could never afford and low and behold osteochondral lesions of 3cm in diameter. I told my doctor that I would have surgery only if it meant a functional increase in my mobility. He assured me I would and I believed him. I hope to god he is right and am now getting a little worried.

Dr. Richard Wilk of Lahey Clinic in Burlington MA performed the surgery on Oct 3rd. I spent plenty of time reading up on the subject before having the surgery as I had to wait for 10 months to recieve the bone allograft from a cadaver. Arthroscopy was not an option and im not sure why so I have a large incision running straight up my knee 2 inches below and above the patella.

I was given marcain intravenously, and dilaudid before the surgery. After passing out I remember nothing until waking up 5 hours later. My wound was completely wrapped up and placed in a brace that kept it straight and compression stockings placed on both legs. Immediately after waking the nurse started trying to tell me what i needed to do (exercises/icing/aspirin/percocet/weight bearing ability etc). This was slightly in vain and luckily my sister was there to remember some of it. THey gave me a paper explaining some of the details of my needs including quad sets/leg lifts/ wearing an anti embolism stocking. My mother and sister picked me up from the clinic and brought me home.

I woke up at midnite the night of the surgery and was in excruciating pain for 2 hours until my sister woke up... consoled me and gave me some more percocet and alleve (even tho they told me not to take alleve) I finally was able to find a comfortable position and then went to bed. The morning after was ok a little tender but ok.

week one
I tried to do as little as possible mostly sleeping for hours at a time and watching tv on my sisters couch. I tried to do my exercises but they were hard, leg lifts were impossible and heel slides were only going to back 5 or 6 inches, I could barely bend the leg.

Week two
was a little more active including trips back and forth across the street from my sisters to my house on my crutches. Going to the bathroom was a pain in the ass because trying to keep the leg straight was of course difficult in a cramped bathroom. I figured that out quick enough... showering wasnt so bad but I still has staples in my leg ans was kind of wary of getting an infection... i showered about 3 times a week... i was cheating a bit by putting weight on the leg in the second week. getting into the shower i need to put some weight on the leg and that is how the cheating started.


Week 3
time was going so slow and I was worrying about work piling up back at my job. My sister let me try to drive her chevy blazer and I was able to bend my leg enough to get in and actually drive quite safely. That was a big relief... being able to drive made me feel like i was able to take care of myself again and go shopping for food if need be. I met with my doctor for follow up this week and a nurse took out my staples. The staples werent painful coming out at all... a little nasty but not really painful. She rubbed the extraction points with a paste that looked like betadine but wasnt and then put little steri-strips on. While my doc was in the other room I read the surgery notes and noticed that they had trouble getting the bone plug from the cadever to flush in to the hole he had cut in my lateral condyle. There was some interesting info in there that I enjoyed reading and wished he would have gone over with me... I mentioned what I had read after he had gone through his spiel. He said I am not bending my leg enough and I have to get it bending.... i was kind of pissed and told him I thought I should have met with a physical therapist BEFORE I had surgery. I had never had any type of surgery before and wanted to do things right from the get go. Meeting with my physical therapist first would have helped me understand the process better and get healing quicker. When I showed my physical therapist how much weight I was putting on the leg she cringed and said NO... you need to keep less weight on it. At that point was thinking about all the times I had cheated and hope I haven't compromised that little bone plug sitting on my femur. Sometimes I sing to my little dead guy bone and let him know that he can grow and be strong . (just kidding)

week 4 Using my crutches is crucial but annoying as all hell. I am getting sores under my armpits and i can put weight on my leg without it hurting at all. I know I am not supposed to put weight on it but when sitting in my kitchen it is hard not to hobble over to the fridge and grab something without using my crutches. I have two 30-60 minute physical therapy sessions per week now. My first visit I was bending the knee about 72 degrees anything past that hurt like a BASTARD. All weekend I kept trying to bend it past that point and would hold the bend for 30 second stints OUCH. The work paid off and on Monday I had gone up to 105degrees of bend... good enough to get on the stationary bike and do some Range of Motion stuff. I am still taking percocets before my physical therapy (5 mg with 325 of acetaminophen aka tylenol) I generally take 2 before going to my appt. Man does that stuff make you itch sometimes!

today is halloween... I think I will dress up as a gimp in my hospital garments.

if you have any questions about what I have gone through or hints.. call me at 207-409-6006.
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 05/11/2004 07:56 AM
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DaveS

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Fantastic news! Twelve weeks is the norm for this type of injury and operation. The external indicators of progress (pain free activity) are great as a guideline; however,I would reconsider the comment the OS made about xrays not showing the true state of progress. Pain free activity may only be temporary if the underlying cause hasn't healed longterm. In addition, the only reason why I say this is because for the most part, my son was totally asymptomatic with his OCD. Obviously, your son must feel terrific in the progress that he's made thus far. Take your time and don't rush back into sports. Great stuff and congrats!
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 05/10/2004 07:11 PM
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ballyhar

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Glad to hear that your son is doing well. My son is also doing well, six weeks post-op. His doctor does not believe in the exray being definitive of his progress, but rather relies on pain and movement. At this point he has had none and has just begun weight-bearing exercises in therapy. He also is swinging a golf club and did some easy caddying this past weekend. He has no pain or swelling. He can also now stretch out his leg without feeling any pain, which is something that previously always hurt him. The doctor said no skating, running, jumping, etc. until at least twelve weeks post-op. Hopefully he will continue to make progress.
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 05/10/2004 11:25 AM
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DaveS

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We had a recent follow up last week (11+ weeks post op), and thought I'd share progress. My son has just finished his last physio appointment, and his xrays taken on Friday have showed him to be 98% recovered. He has been cleared for any sport that he wishes to play - although we are taking it really easy until August. Keep in mind that his lesion was caught extremely early (stable lesion with intact articular cartilage) and was treated aggressively with transchondral drilling. That, plus the fact that he is only 10, equate to a really good prognosis that actually showed to be the case. No evidence that his OCD is bilateral. My son has shown significant mental toughness for his age by staying positive all throughout rehab. I really believe that the break from sports actually served him well oddly enough. Attitude is huge from both the patient's and parent's perspective. All the postings that I have read in here show negative news. Just thought I would pass this on to show that there is a fix!!!
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 04/27/2004 05:42 AM
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DaveS

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It is 10 weeks post op as of today. My son has improved tremendously. His visits to physio have now been reduced to once a week. While there, he does various stretching, and balancing exercises. In addition, he works out there with a leg press. The girth of his thigh is now a little larger than his "good" leg. As mentioned, he's good to go for hockey with no restrictions - but the season is now over. He looks like a normal kid with no limping or tenderness etc. He has just received his orthotics and has adjusted to them well. We believe that excessive running on hard surfaces put additional strain on his knee as his foot tends to roll inward. No longer an issue! Our next follow up is in two weeks. We'll know more then. We're hopeful that this will be the last visit for quite sometime. Don't be too concerned with the 4 weeks of crutch walking. You should expect 4-6 weeks (or longer) depending on the extent of repair needed. In terms of calcification, new bone growth stimulation really kicks in when weigh bearing exercises are done. This is perhaps why your son is to take a calcium supplement. Never lose hope! There's always a fix!
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 04/26/2004 07:05 PM
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ballyhar

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Any recent updates on your son? My son is off crutches-four weeks- but he has not yet had an exray. He has no pain in his therapy, although most of the therapy has been non-weight bearing exercises. Later this week he will start the treadmill. He also has no swelling and continues to use the PSM machine. He is also taking calcium supplements. any thoughts?
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 03/28/2004 08:19 AM
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DaveS

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We had a 6 week follow up xray done yesterday. The results were good and he was released from crutches. He is allowed to skate (public skating) but no hockey yet. (No cutting or impact loading). In two more weeks, he is able to go back into hockey with no restrictions. Too bad the season just ended. He is 85% in terms of recovery. My son does physio every day at home part of which includes stationary bike riding. He also goes to see a PT twice a week to give us more exercises to do as well as to ensure there are no problems with scar tissue. The lesion appears to be a little slow in gaining some additional calcification at this point. Afterall, it has only been 6 weeks. The surgeon is not concerned as my son's progress in terms of ROM and weight bearing have been significant, and there is noticeable vascularization and some calcification where the lestion was. Next follow up appointment is in 6 weeks. That would be 12 weeks post op. I was told in my earlier discussions prior to the surgery that if any type of fixation was needed, typically atheletes (hockey players specifically) are back into the sport after 3 months. In my son's case, only drilling was needed as the lesion was stable. In addition, orthotics may be needed as my son's foot over pronates on that same leg.
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 03/24/2004 12:59 PM
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ballyhar

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My sixteen year old son just had surgery and, while it was intended that screws would be put in to secure the bone, when the doctor went in it was determined that there was no underlying bone to screw into. However, any surrounding bone was intact and all the cartilidge was fully intact. He felt that this condition was definetely genetic in origin, as opposed to any trauma to the knee. We are hopeful after the drilling that it will be successful. How is your son's recovery progressing at this point?
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 03/02/2004 12:58 PM
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DaveS

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My 9 year old son just had subchondral bone drilling for his case of OCD. Much like yours, he is extremely active (hockey in winter, and lacrosse in the summer). He never experienced any symptoms while playing hockey, it was only after running for a while when he began to limp. We attribute this to catching the lesion extremely early as I'm sure that pain would have eventually crept into his hockey game. MRI's confirmed my son's condition, but the arthroscopic surgery showed that the lesion was extremely stable with full cartilage intact (these two points are key to success for JOCD). It has only been two weeks since the operation and follow up xrays clearly show significant improvement in terms of vascularization and calcification. Almost to the point where the lesion is undetectable. The key is to catch it early, ideally when the patient has open growth plates, and is treated relatively aggressively. This has been confirmed by two surgeons we've seen to yield the most positive results. So far, that appears to be the case. Don't lose hope!
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 02/07/2004 09:10 AM
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ballyhar

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Our 16 year old son is having surgery next month for OCD. The doctor is putting in compression screws and for eight weeks my son will be non-weight bearing. Following that period the screws will be removed. This decision was made after about nine months of no pounding activities and he still is unable to run, play basketball and some normal things without pain. Interestingly though, he is able to play hockey and is pain free when skating. Has anyone had this surgery with the screws and what was the result and the recovery time following removal.
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